I am going to warn you that this wasn’t an exciting day on the battle to kick cancer’s butt. That was expected at this point in the process. I will soon have days that will bring nausea, diarrhea, fever and just about everything else you’ve ever heard of cancer side effects. One of the biggest complaints about my hospital stay is how often you are awakened at night and then an early wake up call. Last night wasn’t that bad as there were only 3 disruptions where the previous night was 4. There is a 4 AM and a 4 PM drawing of blood. Luckily, I have a PIC line so I don’t have to get stuck. The rest are just the checking of temperature, blood pressure and oxygen in the blood, all simple but still awakening in the middle of the night.
My day today was pretty simple. I met with the nephrologist, and we decided not to have an extra dialysis. If you are on a MWF schedule you would skip Sunday which we agreed to do. Then in the meeting with the oncologist she decided to add another medication to help with the blood pressure. I am now up to about 25 pills daily. I finished off the day with a unit of blood and a unit of platelets. This is a little early for this but because I was so low when we started they had to accelerate the program.
That’s all I have about the transplant, but I couldn’t let Mother’s Day split away without a mention. Like many things in life, we don’t appreciate the best things in out life until they are gone and as I have aged I have come to the conclusion that my mother was easily the biggest influence in my life despite the fact that at times I felt more than a little over protected. It must have worked because I think I turned out alright.
I am sure you all have feelings about your mothers, good, bad, or indifferent. Just take a little time and remember the best of times and thank her for that because there were probably thousands of times they did things for you that you didn’t even know about and sacrifices you never knew about.
I wanted to write a piece on my mother today so I went back to the blog in 2015 when I wrote a blog on her. I am going to place it here again. Don’t feel like you need to read it, but if you have a few minutes please do.
Forty Years Is a Long Time -- September 13, 2015It is funny the things you remember in life and the things that sit in the background. Some things are fuzzy and other things are crystal clear as if there is a photograph somewhere in your brain to remember what things looked like at the moment something happened. They don’t always seem to fit into what you think the priorities should be.
It was forty years ago that I received the call from my Dad that I needed to come to Dayton from Columbus because my Mother was nearing the end. I know I received the call but I remember nothing about it. Yet, the scene in the hospital will be forever etched into my mind. After we arrived at Good Samaritan Hospital, we were met there by our neighbor and friend Dr. George Markus. He spoke to us briefly and insisted that we not enter the room. It would be better if we didn’t see her this way before her death. This moment is the photograph in my mind. Sitting there in the waiting room waiting for the final notification. After being at my Dad’s side in his last moments, I understand why it was suggested that we not be in the room, but in retrospect, I wish I had been more insistent that I wanted to be with her.
You may have noticed that I referred to my parents as “Mother” and “Dad.” I was never to call her “mom.” That is what I called my grandmother, my Mother’s mother. In her mind, being called Mom would make her feel old. She always looked older than she was because of her early gray hair, actually being asked several times if I were her grandchild. As a result, she was always “Mother.”
She did not have an easy life. She only attended 10 years of school because she needed to work. She had more health issues than you could count. She always joked that she was the fifth child and was made of left over parts. In addition, she suffered a nervous breakdown and went to Florida for some time with my Aunt Edna to get her life back together. She went through times where she considered suicide. Yet through it all she had a love for me that was never ending.
My parents were married for 18 ½ years when I was born. It was always “18 ½” as if the ½ made it more officially a long time. They had tried for years to have children with my Mother having three operations in the 1940’s to help her conceive. Finally in 1944, they gave up when the doctor told her she would never have children. They had thought of adopting but my grandfather had forbidden them from adopting. Not sure about all the details, but it was made clear that he would not accept the child as his grandchild. They were a couple that loved children, having a hand in helping to raise my two cousins, Nancy and Jeannie when their parents divorced and my Aunt Ethel and the two girls moved in. They just would never have their own.
Then the miracle happened. My Mother was pregnant. It wasn’t that she had miscarriages in the past, she had never been pregnant. It was late spring 1952 and their world changed. He would soon be 40 and she would be 38. They were finally going to be parents. Six months into the pregnancy, my Mother started bleeding. She was immediately told to go to bed and stay there for the next three months. One thing my Mother was not, was someone that liked to be still. She always had to be doing something. That had to be one of the most difficult times in her life.
There was always the hope that there would be additional children but that just was not to be. In my Mother’s eyes, I was perfect and I was enough. Little Johnnie did no wrong. I actually was a pretty good kid, but in my Mother’s eyes I could have been a juvenile delinquent and she wouldn’t have believed it was my fault. Because I was this special gift, she was extremely conservative with everything about me. I have no memory of having a babysitter that wasn’t a relative. I would stay at the neighbor’s house after school or with my parent’s business partners but that was as close as it got.
I was going to receive a bicycle from my aunt and uncle when I was 12 but they were told to take it back. We lived in a park like area with very little traffic but Mother thought was I was sure to die if I actually wondered out in the street. Finally, at Christmas when I was in the eighth grade I actually received that bicycle. Do you know how hard it is to learn to ride a bike when you are 13? And it is a lot farther to drop when you are taller than four feet.
When I entered high school, my mother decided that they would sell their portion of the grocery store. Since she never felt comfortable driving, we only had one car and she was home every day when I came home with a snack waiting for me. For breakfast, I would have whatever I wanted. Since she only slept about 2-3 hours every night, she was always awake when I got up. When I started working in the summers, she would make me two hamburgers and French fries for breakfast. (Please keep your spoiled brat only-child comments to yourself.)
I have a standing comment that I have with people that meet my wife, Julia (not sure how that happened name wise), that everyone loves her. She can walk into a room of strangers and an hour later walk out with 10 new Facebook friends. That is the way my Mother was. Everyone loved her. She could not do enough for you. If you needed something, she would do it. If she could help in any way, she was first in line. My Julia is the same way. They say you marry your Mother, maybe I did.
It has been 40 years since I have heard her voice. I miss her and who she was. I think I was a pretty good son, but I wish I could have been there with her more as she was fighting her losing battle against cancer. I have a million questions for God when it is my time, but before I see Him, I want to see her and ask her how I did.
Happy Mother’s Day!
